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Like Wings, Your Hands. Elizabeth Earley
Читать онлайн.Название Like Wings, Your Hands
Год выпуска 0
isbn 9781597098069
Автор произведения Elizabeth Earley
Жанр Зарубежная классика
Издательство Ingram
Marko was oblivious. Not just because he couldn’t feel anything down there, but also because he wasn’t aware of the stigma. As a paraplegic, dealing with urine leaks was as routine and uneventful as visiting the toilet is for non-paraplegics. It simply didn’t bother him. It bothered Kali though. At school, his diaper sometimes showed, sticking up over the waist of his jeans. Kali felt embarrassed for him because the other kids could see, and she’d seen them looking.
When his bladder was completely emptied, Kali withdrew the catheter tube and cleaned it.
“Feel better?” she asked, putting a fresh diaper on.
“Yes, thanks,” he said, and Kali felt bad. Because he didn’t feel better. Of course he didn’t—he couldn’t feel a thing, not the tube, not the irritation, not the urge to pee. It was Kali who felt better, knowing that his bladder was empty and that he would be okay for at least four hours.
Although many kids with spina bifida could feel when they had to pee, which allowed most of them to actually use the toilet, at least some of the time, Marko could not. Kali used the toilet for Marko only when he had to poop. She would sit him on it and jiggle him around some until a few nuggets come out. Lately he had been so constipated, though, that the pressure built up in his intestines was pressing on his bladder and causing him to leak a lot between catheterizations.
“Mom, do you know why my skin starts to look so wrinkly when we’re in the water too long?”
“I don’t actually know.”
“Because the oil in our skin that makes it waterproof, called sebum, seeee-bum, gets all washed off. Then, the water soaks into the top layer of the skin and makes it soggy.”
“How do you know so much?”
“I look stuff up.”
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